Hello, my name is Jude and I am 3 years old. I have recently been told I have Juvenile Idiopathic Arthritis and Uveitus, I have shortened it to ‘JIA’. Juvenile means young people like me, Idiopathic means it happens for no reason, Arthiritis means painful joints.
JIA is an arthritic disease that affects my joints, so far affecting my knee and my ankle. To help me, I have steriod injections every six months. Uveitus is a rare eye conditon that runs alongside JIA affecting 10 – 20% of kids like me, in the long term it can lead to sight problems.
My aim is to raise as much money as possible to support research and the future for kids like me. To start my fundraising campaign I wore purple for JIA day at nursery on 8th June 2018, all my friends and family did too to support me.
I would like to raise awareness of my condition to other mummies & daddies. At first I kept blinking all the time and I couldn’t help it. I met with loads of different doctors in different places, they gave my mummy lots of different types of medicine to put in my eyes. They said I had a dry eye then conjunctivitis then epilepsy and finally diagnosed me with the rare condition Uveitus & Juvenile Idiopathic Arthritis. When the Opthalmic specialist asked if I had complained of aching joints, I had mentioned aching knees to Daddy that morning which my parents thought was just ‘growing pains’. The doctor then told me how the Arthritis and Uveitis went hand in hand. An emergency appt was made to see a Rheumatologist who confirmed my diagnosis & arranged for me to have steroid injections, I was asleep and dreaming whilst they did this! Steroid drops are prescribed to reduce the inflammation in my eye. Mummy & Dad had to do this all through the night for me, every hour.
Please could you click on the donate link at the top to go to my Just Giving page and donate some money to help find a way to cure me.